Jeeday was born with Prader-Willi syndrome, an incredibly rare medical condition affecting around one in 15,000 children within the UK. It causes a wide range of physical symptoms as well as learning difficulties and behaviour that challenges.
Jeeday continues to prove the assumptions wrong that people with his condition need to be institutionalised. He has been thriving in a supported living environment, and lost over eight stone in bodyweight.
There are many challenges with this condition. The most prevalent is insatiable hunger. In the case of Jeeday, the condition led him to eat inedible items.
However, since moving to Chosen Care, in Gloucestershire, colleagues have supported him in leading an active life, with diet, exercise and 24-hour care empowering Jeeday to achieve the weight less.
Jeeday lives a happy life at Chosen Care.
“We’re incredibly proud of Jeeday and his remarkable journey. When he joined us, he was extremely overweight, due to his condition, and would consume items such as shampoo as he wasn’t able to control his hunger.
"Our team has worked with Jeeday's doctors and dieticians to implement a structure that has brought his weight down to 146kg with activities like cycling, gym visits and long walks".
One of the reasons many people living with Prader-Willi syndrome face being institutionalised is the challenge presented by living with others, as food consumption is more difficult to monitor.
However, to combat this, colleagues at Chosen Care successfully identified and introduced another person they support as a housemate to Jeeday, which has been a great success.
Colleagues at Chosen Care have seen significant changes in Jeeday’s quality of life. Some of the personal goals he has achieved include going swimming at his local leisure centre, embarking on days out to Bristol, and getting his first tattoo!
“Our colleagues always go the extra mile for the people we support, and Jeeday’s incredible success is the perfect example of this.
"I hope this serves as an example to other support providers of how individuals with a range of complex needs can be given the support they require to unlock their full potential, with the right approach and team. We can’t wait to see Jeeday continue to thrive.”
National Care Group is one of the UK’s leading adult social care providers. We support adults with learning disabilities, mental health diagnoses, acquired brain injuries, and autistic people, with services across England and Wales.
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